And Other Things I’m Good At, Netflix and Hill: The True Story Behind “Afflicted”, The Art of (Not) Accepting Unsolicited Advice, PICC IV insertion procedure which I redid for the cameras, My low NK cell function, low cortisol, MTHFR gene mutation, active cytomegalovirus and EBV tests. Before I convinced Dr. Gordon to come see me, that same producer got frustrated and wanted me to travel four hours to the Bay Area to see an ME specialist even though I was physically unable. We exchanged the following text messages: I thought she was joking, and she probably was at the time, but shortly thereafter that same producer contacted my mom and actually suggested that she give me a tranquilizer and transport me to a doctor. In realty they only filmed me during July, August, and September; no snow. Nonetheless, through a combination of deceptive questioning and clever editing techniques, the producers created a false reality for her and me in that scene. I was about to undertake a process in which me and my family would devote dozens of hours without pay and under false pretenses. But this is the type of focus that is employed on Intervention, the reality show in which people are confronted about their addictions on camera, which at one time was made by the same producers who made Afflicted. Controversial diagnoses. Star's two-week treatment costs $11,000. We are some of the subjects of the recent Netflix docuseries, Afflicted. His “joke” immediately popped back into my mind as I watched the so-called “experts” he interviewed on the show and how they rattled off nonsensical psychobabble about physical illnesses — essentially denying that some of the illnesses portrayed on the show are physical, instead insisting they originate in the mind. If giving all of your surplus energy to try to make yourself better is “becoming” an illness, then sure we “become” it, but if we’re talking about finding some sort of clandestine enjoyment or comfort in living as a sick person because we don’t know how to live any other way, well, that’s one of the most idiotic things I’ve ever heard; that’s not us. Perhaps I should just be happy that my story was told at all and that it’s raising awareness, albeit the wrong kind, but that’s nowhere near good, or even acceptable, enough for me.
I consider mental health a very important issue, but Afflicted should never have been about that. That is essentially what the producers tried to do with Afflicted, except it didn’t work. . From the producers of the Emmy-winning series "Intervention.". Then, so the cameras could film the minor surgical procedure, I asked my nurse to come out and insert a second midline.
In fact, one could argue that they gave far more air time to skepticism than the scientific research that is being done on the chronic illnesses profiled in the series. Ideally, psychiatrists like Dr. Richard Friedman should never have been interviewed. If nothing else this step should have exempted us from the level of scrutiny we faced on the series about our mental health. People with mental health conditions deserve empathy and care and the treatment they need, just like those of us with chronic physical illnesses deserve those things. Baffling symptoms. But in hindsight I should have seen the focus on mental health coming.
Was Henry Avery's Treasure Been Found, Several of the other participants in Afflicted have also written blog posts about their experiences. 1. Baffling symptoms. At one point he even asked “Does it hurt to talk this much? In fact, I still regularly take Ativan because it does help. Either way, they asked me to do a completely unnecessary medical procedure for the cameras and it never made it into the film. Now that Afflicted has come out, it’s apparent that he wasn’t entirely joking. I’m not victimizing myself, or anyone else, but I am incredibly disappointed with the scope and slant of the overall series. Sorry, your blog cannot share posts by email. Mental illness is serious and devastating, and were that an explanation for our symptoms, we would gladly pursue treatment. “Acknowledging” skepticism doesn’t make people take us more seriously, especially when the evidence of their biological basis – both my abnormal lab results and the broader research – is purposefully excluded. Instead, in many ways, it has added more skepticism to the conversation. It’s unfair to categorize people like this because they “become” their illness.
For that reason, he declined.The “Afflicted” cast members said the editing of the series warped their stories to such an extent that they are no longer true.Janine, who works as a nonfiction/documentary television and film editor, explained that she’s very familiar with the editing process and the need to manipulate soundbites to create a storyline.
Seven people with chronic illnesses search for answers -- and relief. Mine is not a simple illness. Disbelief About The ‘Afflicted’. The truth is the film crew spent an entire day at the 2017 Community Symposium on the Molecular Basis of ME/CFS, which was held at Stanford University, where the crew interviewed numerous ME/CFS researchers who I know had a better explanation of the disease than: “We don’t know what it is,” which is a sound bite featured frequently throughout the series. Imagine if, in my memoir, I quoted my mom in a scene that she wasn’t actually part of or even just twisted her words around. That’s why, perhaps out of sheer instinct, I worked extremely hard to make sure my story was told in the best possible light. The year and a half prior to that I had been too sick to chew food and had to survive on IV fluids and liquefied meals. But based on the footage I saw the film crew capture compared with the footage that actually appeared in the finished product, it’s fair to say that there was a coordinated plan between the post-production team and the field producers who oversaw filming. So stayed tuned! And now that’s what I intend to do. I have debated about writing this blog post because in being honest about my experiences with Afflicted, I felt it might diminish my story and the stories of my fellow participants. One such episode was devoted to “Identity,” suggesting that those of us with chronic illnesses spend so much time in poor health we become consumed by the lifestyle and don’t know how to live any other way, which is a completely asinine point to make. There’s one sound bite from a doctor who says that studies have shown that trauma can damage the immune system, that’s absolutely true. The latter is basically what the producers did and now it seems they’re trying to justify their actions with flawed logic.
They also chose to omit any mention of the psychological evaluations that were mandatory for all of the main subjects of the series. It was around this time that I learned that I would not be paid for my time and effort on Afflicted. Star has been diagnosed with a dozen different conditions.
But here’s the thing, nobody who has watched Afflicted knows any of this because the producers left it all out. Are you in pain?” to which I nodded my head, and then unsympathetically, he continued asking me questions. 2. The most frustrating part about the series’ focus on mental health is that it was never even mentioned that I’ve tried therapy and antidepressant medications.
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